To help families with VWM

  • Purchase necessary medical equipment not covered by insurance
  • Purchase specialty vans necessary to carry wheelchairs and support disabled children
  • Support the costs of adapting a home for wheelchair access
  • Support the travel for medical treatment
  • Support attendance at Leukodystrophy conferences so families can learn about the best options for their children

 To support the only research projects in the world trying to find a cure for VWM

Thank you for your support!

*Link to pay pal or whatever accepted form of receivables