Vanishing White Matter disease (VWM) is a very rare neurological condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body.

VWM primarily affects children and is untreatable, incurable and terminal.

In 2016, the VWM Families Foundation was formed to raise awareness of VWM, to raise money for research and to support families living with VWM within the United States and worldwide.

The VWM Families Foundation, INC is a registered 501(c)(3) charitable organization