Vanishing White Matter disease (VWM) is a very rare neurological condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body. VWM primarily affects children and is untreatable, incurable and terminal.
In 2016, the VWM Families Foundation was formed to raise awareness of VWM, to raise money for research and to support families living with VWM within the United States and worldwide.
The VWM Families Foundation has an ambitious goal of raising $2 million over the next year. This money will fund two promising research projects and support families with necessary medical expenses not covered by insurance. We are so grateful for all the efforts and contributions to date and know with your help we will reach our goal.
Every day without a cure means life or death for children with VWM. It is up to us to fund critical research and save their lives.
Please Donate Today
To help families with VWM
- Purchase necessary medical equipment not covered by insurance
- Purchase wheelchair accessible vans necessary for transport
- Support the costs of adapting a home for wheelchair access
- Support travel for medical treatment
- Support attendance at Leukodystrophy conferences so families can learn about the best medical options for their children