Challenge yourself to move 10,000 steps a day this September to support people with Vanishing White Matter disease

Every step you take will help fund life-changing research

In honor of Leukodystrophy Awareness Month, help raise awareness and funding for research for VWM by taking 10,000 steps a day for those that can’t. For every day you complete your 10,000 steps, we ask that you pledge a donation of $1, but for the days you don’t hit your goal a donation of $5 should be made to the VWM Families Foundation

Your support will fund critical research and the first-ever human clinical trial being conducted at the Amsterdam Leukodystrophy Center.

Make this challenge your own and complete your activity wherever and whenever works best for you with a friend, team, or solo. Step however you choose to step — walk, run, roll, dance, etc. The choice is yours! While we encourage everyone to fundraise, there is no fee to join or minimum fundraising commitment.

To participate in the challenge, simply fill out the form below and get stepping!

Don’t forget to download and save the step tracker at the bottom of this page. From there, you can join the challenge Facebook Group, and start your own Facebook fundraiser to encourage others to support your challenge and connect with us socially. 

For those that take the challenge and make a minimum pledge donation of $100, you will receive an exclusive Finding a Cure for Vanishing White Matter disease STEPtember shirt at the end of the challenge (to be delivered in October).  Shirts are also be available for purchase here: Shirt Order Form